What Members Are Sharing
EP
Emily P.
Special Needs Mom
IEP meeting went better than expected today! The advocate we found through here made all the difference. Don't go into those meetings alone.
❤️ 12💬 4 replies🔖 Save
BR
Brian R.
Dad & Caregiver
Our son's feeding tube was removed today after 3 years. I never thought we'd get here. Sending hope to every parent still in the thick of it.
❤️ 15💬 5 replies🔖 Save
NW
Nina W.
Child Caregiver
Looking for other parents of kids with rare diseases. The isolation is real. Sometimes I just need someone who doesn't need an explanation.
❤️ 18💬 6 replies🔖 Save
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"
Our daughter was born with a rare chromosome disorder. We were told what she couldn't do before anyone told us what she could. I needed parents who were further down this road. This community gave me hope when the medical system gave me statistics.
— DAVID & KEISHA R., CHILD CAREGIVERS, GEORGIA